Timmy was born September 29, 2010. He was diagnosed with a Type 3 laryngeal cleft, along with several other more minor issues. He spent six months touring the NICUs around Ohio, and now he lives in Maryland. This is his story as told by his best bud, Mortimer.
Tuesday, March 29, 2011
Feeling better!
Timmy is finally starting to feel better! Thursday and Friday were his worse days. He was a little better on Saturday--he was even awake some on Saturday, but when he was awake he was not really alert. Sunday was a bit better. And yesterday we thought Timmy was finally starting to feel normal again.
The doctors are not exactly sure what was wrong, but we think it was the result of some bacteria in his PICC line. His PICC was clogged on Wednesday night, so they put some special stuff in to break up the clogs, and then they flushed the line. We think that when they flushed it, some bacteria was pushed into his blood. It is also possible that some of Timmy's ickiness was caused by teething and/or missing Mommy.
The good news is that we do not think that this will push back our plans to go home by more than a couple of days. They pulled Timmy's PICC line on Sunday--this is the first time he has not had a PICC line since he was five days old.
Yesterday Timmy's nurse thought his mommy had gone completely crazy. They were giving Timmy a bath, and in order to do so, they had to unplug Timmy from his monitors. They also clamped his G-tube. Since the PICC line was gone, that meant that for the first time ever, Timmy was not attached to anything. Timmy's mommy picked Timmy up and went running around the room (even out in the hallway), holding Timmy up in the air and waving him around saying, "So this is what it's like to have a wireless baby!!" I ran in circles around them, squeaking up a storm.
Every day now Timmy gets to do "tastes" of milk, up to 5ml. Timmy has not been too interested in a bottle. He mostly just chews on the nipple and looks up at us, as if he is asking, "So what do you want me to do with this?" He has been playing with spoons, and today we decided to put his milk on a spoon for him to taste. That went much better! He took 3ml by spoon today. We should have known that Timmy is a big boy now and does not want to do little baby things like drinking out of a bottle. But I can safely say that Timmy still likes eating me the most!
Timmy is six months old today! We had a party for him this weekend while Daddy was here. And then Timmy wore his hat for rounds this morning. Poor Timmy is going to be very bored when we go home. He will not have all of his friends stopping by to talk to him all the time. But we cannot wait to introduce Timmy to home, and to outside, and smells, and sunshine, and what it feels like to zoom along in a stroller, and carpet, and to the joys of taking a nap without anyone cleaning or emptying the trash or stocking his cart, and...there are just too many exciting things to think about!
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LOL ... LOVE the line about "wireless baby." :~)
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